Wednesday, November 3, 2010

What's up?

This is a bad time of year....figure skating started and I've started PT and there are all these bloody books lurking about....o, and I've been working on getting a van.

I love figure stating....probably because I can't stand up on shoes with blades or 4 wheels. I tried for puppies years but decided cement and and wood they using in roller rinks are hard on your butt so after 5 years, I decided to give it up! Then I went to join my dad in Germany where some friends took me to and ice skating rink. They convinced me that ice skating was way, way easier than roller skating. (14yo are so gullible!) So off we go with a friend on either side. Those skates seemed to have minds of there own! Next thing I knew they were crossed! I asked my friends what to do in such a situation. They let go of my and started laughing hysterically. Lesson: some friends are either big fat liers or don't know what they are talking about. Lesson: falling on ice is just as hard as wood or concrete do hurts the same BUT it is also very cold and wet. I don't remember how they got me off the ice but I can tell you that was a lesson learned last attempt to try ice skating! It took me 3 years but I did finally manage to ride a 2 wheeler.

PT, what fun (sarcasm). It's early days so not much to show but I'm going.

I've figured it out. I borrow a Kindle to read to and from and while waiting for PT.  I have a paper back to read at home. Audio books are listened to at bed time. So far this is working well except I can't read and watch the skaters at the same time! AND then there are the book reviews I need to write (lots!!!) I haven't figured out exactly how fit in this later as it seems I am in a reading frenzy but not mush into sharing. It's not to worry, things will get figured out!

O, VAN! One other owner (paralyzed vet from first gulf war). He passed and his mother asked the people they got it from to sell it for her at a really reduced price. It's a 2002, White with grey interior. Power just about everything especially the lift which will lift me and chair up and in and lock us down. I hope to have it in about 2 weeks. Randy, sales guy, if off this week so it will have to be next week before we work out what little changes need to be made for me. So, hopefully I will have a van before Thanksgiving! Thanks to all who held good thoughts about me getting it!

Well, today was PT day and I am pooped! Later friends~

Monday, November 1, 2010

I stole this posting from Frugal Creativity. I know it is not nice to steal but you see 65 years ago I was born with this disability and I just thing she did a better job than I could do. So please read.


October is Spina Bifida Awareness Month

I'm passing along this press release, just as I received it, to help raise awareness of Spina Bifida and ways to help prevent it.

Spina Bifida Association Launches New Program and Asks You to Educate Yourself and Loved Ones During Spina Bifida Awareness Month

Through Education SBA Hopes to Help More Families Learn About the Birth Defect 

WASHINGTON, DC--(Marketwire - October 1, 2010) - Did you know that birth defects occur in 7 out of every 10,000 live births in the U.S.? And Spina Bifida is the most common permanently disabling birth defect? In honor of October being Spina Bifida Awareness Month, the Spina Bifida Association is asking folks to take a few minutes today and get involved in the awareness month by educating loved ones.

The first question many have: What exactly is Spina Bifida? In short, Spina Bifida happens when the spinal column doesn't close completely.

And how many births each day are affected? Well, it's hard to believe, but eight births each day are affected by Spina Bifida or a similar birth defect of the brain and spine. If you think about it, there are currently over 65 million women in the U.S. who could become pregnant and each one of these ladies is at risk of having a baby born with Spina Bifida. So because Spina Bifida occurs during the first month of pregnancy (that's even before most women know they're pregnant!) it is that much more important to take proper precautions to help try to prevent it now.

Okay. So what type of precautions can help in prevention, you may wonder? Although at this time there is no known cause of Spina Bifida, research has shown that if a woman takes 400 mcg of folic acid every day and before she becomes pregnant, she reduces her risk of having a baby with Spina Bifida or another neural tube defect by as much as 70%! That fact is reason enough to encourage women (and men) to get out there this month and spread awareness.

Families with a history of Spina Bifida should take extra dosages of folic acid prior to pregnancy. Hear one mom's message:

And in honor of October's Spina Bifida Awareness Month, SBA will also be launching some great new online resources, including:
  1. SB University (SBU) (, a new online educational program featuring taped sessions from the 2010 National Conference as well as monthly live seminars conducted by Spina Bifida medical professionals from around the country. During Awareness Month, SBU will debut new sessions each Monday.
  2. SBTween2Teen ( a new Web site for tweens and teens with Spina Bifida. Complete with blogs, videos, real stories, fact sheets, and an Ask the Expert feature, the interactive site helps tweens and teens navigate the difficult road to adulthood. There is even a social networking component run through Facebook, allowing tweens and teens to interact with one another and build peer-to-peer relationships!
  3. Preparations, a new transition-focused Web site launching in late October allowing parents, caregivers, and clinicians to answer specific questions with regard to a child's developmental milestones. This tool can even help young adults remedy some transitional challenges.
For even more information, tips and resource, you may visit: And be sure to join the Spina Bifida Association on Facebook:

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network ofchapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. For more information visit:www.spinabifidaassociation.orgDisclosure: I have not received any compensation in any form for sharing this information. Just trying to help spread the word!